Inspiration Through Art – Sophie

Sophie is beautiful.  I’m so thankful for the opportunity to meet this precious little girl and to take her photos.  Thank you to Inspiration Through Art for teaming up photographers with familes in need!

If you’re not familiar with Inspiration Through Art, you should definitely check out their website www.inspirationthroughart.org  Here is their mission statement below.

“Inspiration Through Art (formerly The Littlest Heroes Project) is a non-profit organization dedicated to empowering young people to give back, and make a difference through the beauty of art. We are artists with a passion for giving and inspiring others. Through our own artistic talents we are able to come together as one, to let children around the world know that they are loved,despite the challenges they face everyday.

Inspiration Through Art was founded in January 2008 by Felicia Reinhard, made up of professional photographers, artists, children, and other volunteers nationwide that provide free programs and services to our nations heroes. Through the power of photography and the gift of art we are giving back and taking a stand for these children who sometimes feel forgotten because of their illnesses. We are here to let them know that they are heroes to many, and to share their inspirational stories and photos with the world.

If you have a child, or know a child, who suffers from any type of serious illness or life altering disability we are here to help. Inspiration Through Art provides our special heroes with complimentary photo shoots, special cards and mail, gift packages, and various  other programs, events, and fundraisers.

Our mission at Inspiration Through Art is to help provide and capture memories for families who are dealing with hectic schedules due to having a child who is suffering from a serious illness or life altering disability. We are here to offer emotional support through the beauty and expression art has to offer, as a way of healing and coping. We understand that in the midst of being thrown a diagnosis and having to switch from a “normal” life to a life that is totally different, and often scary, things like getting photos taken is sometimes a huge challenge and is one of the last things families are thinking about. But when everything is done, and either the child has reached the end of their battle, or has proven the odds against it many wish they had more time to stop, and capture the journey that they lived through for so long.

Through Inspiration Through Art- our photographers and volunteers understand that each and every case is unique, and cater it to fit and honor each child and family. Our photographers are on hand to travel to homes, hospitals, clinics, fundraisers, and benefits to help capture your child’s journey in a “Day in the life” sort of style and work personally one on one with your child and entire family to get those special family photos and moments that you can cherish for years to come. Our special Mission Inspire volunteers work year round to create special programs and events for our current Team of Heroes! This special program is setup for children who are currently in treatment or in the recovery stage of their journey. Throughout the year packages will arrive with a special art piece donated and/or handmade just for your hero! All of our services are free of charge and are made possible by volunteers around the world!”

Now, back to Sophie.  I hope her story and photos will touch and inspire you as much as they have touched and inspired me.  She is truly a little hero.  Here is her story below, recounted by her mother, Sarah.

“At my 20 week ultra sound we detected my baby to have a small cerebellum section of her brain.   At that time we were told that she likely had Dandy Walker Syndrome.    We were given a grim prognosis before she was born.  We were told she would seize daily and have possible  fluid on the brain.  They did not expect for her to smile, laugh or walk.  I was induced for C section due to a failure to thrive while I was pregnant at 38 weeks.  Sophie Mira was born April 21, 2010, weighing in at  3lbs 3oz being only 2 weeks early.  After genetic testing it was determined that she actually had 2 chromosome disorders.  The first and less severe disorder was Turners Syndrome, which causes short stature and infertility in most cases.  The second was Trisomy 10, which means instead of two chromosome 10’s my daughter has 3.  Tri10 has created a hole in her heart which will require open heart this summer to repair.  Recently we found out she has scoliosis. and there are plans to straighten her legs which will require a number more surgeries. Due to the failure to thrive and her heart condition she needed surgery in order to come home from the hospital after a couple months in the NICU.  A G-tube was placed to ensure feedings would be achieved and she could grow and gain weight for a heart surgery.   She has had 2 hospitalizations in the past couple years for pneumonia and has respiratory infections often due to the heart causing low immunity.  Just recently I was blessed with the opportunity to stay home full time, and Sophie has excelled.  She is smiling, laughing and started saying dada.  We have had extensive home therapy programs and splinting of her hands and feet since birth .  Her hands improved so much she only needs her feet splints now.  Although it took Sophie a long time to grow she is now over 2 years old and  15 pounds.    We are hopeful that this surgery will help her to grow even bigger, stronger and healthier.  Because of Sophie and her story we have had life experiences and met lifelong friends I would not have met without her.  I feel like she has been a blessing in so many ways to me already. I anticipate what else she has for me to learn through her life.”

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2 thoughts on “Inspiration Through Art – Sophie

  1. Our daughter also has Turners. She also suffers from brain damage from birthing issues. She is almost 14. She may be small, and have tons of challenges but she is the happiest little girl in the world. Congratulations on having such a beauty of a daughter….. Go take on the world Sophie!!

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